I really wanted a second opinion before we started treatment. It did not look like it would happen; however, our regular peds doctor somehow (pretty much a miracle) made this happen this morning. We were seen today at Children's Hospital in L.A. Mr. Blue Eyes was not thrilled, and I can't blame him, but I had to do this for him and for our peace of mind. We saw Doctor Sun, and she confirmed the diagnosis. Then she gave us her protocol for treatment: 18 weeks of ALCL 99 Therapy — five days in the hospital and then three weeks off to recover, repeated over and over again.
Oh yes, I wanted to throw up all over her hearing this...... MY mind went crazy. What treatment is best for him? How will I know? I launched into a dark place. Fortunately, my husband being the man he is, he just stays calm and cool as can be. He holds my hand while I do my wig wig, and then I am OK again!
WOW overload!!!!!!!!!!
WOW overload!!!!!!!!!!
We got in the car and called our doc. He confirmed that this is a treatment he uses, but only on stage 3 and 4 lymphomas. He said he would call and collaborate with Dr. Sun a bit. FEWEE! WE ARE FEELING GOOD! We love our Doc and we are sticking with him. We have prayed for his inspiration in Corban's case. We are trusting this and not looking back now. Onward we march. We get up at 4:40 a.m. to head to the hospital and be there by 5:30 a.m. to check in.
Happy Birthday to a special aunt today from Corban!!!! xoxo
Happy Birthday to a special aunt today from Corban!!!! xoxo
Love you Angela and Corban. I just finished reading your whole blog. I love that you have done this so we can support you even more by knowing how your doing. God and his angels be with you and your family. We are praying, sending our love and thinking of you. Hugs, Kisses and Love to you all!
ReplyDeleteLove, Bopper
You did what you felt was right. And now you know that you have made the best choice. Hopefully this contributes to your peace of mind. City of Hope has a great track record; you are in good hands. And you are in the Lord's hands - the best place to be!
ReplyDeleteAngela! I just heard the news about Corban and am grateful to Kristin for directing me to your blog. i want you to know that I am joining the hundreds (thousands!) praying for you and your family. You are strong and he is so lucky to have you for his mom through this trial. I won't call because I'm sure you are overwhelmed by phone calls already and just need to spend the time you have at home with your sweet kids and hubby, but know that I'm thinking of you and sending you virtual hugs and would love to do whatever I can to help out. You are an angel, just like your name says, so of course there are lots of other angels attending you right now. I hope the first round of chemo went well and am anxiously waiting to hear on here how it was. Love you!
ReplyDeleteBecky Jensen
Ang, I have been thinking of you all day. I am so glad Corban is getting the treatment he needs to finally start fighting back. Go Corban!!! He is going to beat this thing!!! I am so glad you are his mom. You are one of the strongest women I have ever met. Your heart is brave and true. I love you!! Let me know how I can help. I will be on your doorstep in a flash.
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ReplyDeleteWell, after I spent a few days crying, I finally sat down and read this. First of all, please tell my Corby how much I love and adore him. I have a picture of them each on my locker at work, and I'm grateful I get to see his bright shinning face everyday. Tell him that How to Train your Dragon is my favorite movie, and I can't wait to watch it with him :)
ReplyDeleteTo my awesome big Sis -- You have such a wonderful heart and strength that I am sure your family is grateful for. Please take care of yourself and let me know if you need anything - I love you!!
Your mom just told us about Corban and told us about this blog. Sorry we didn't know about your long struggle for answers. But now your know what The Monster looks like and it sounds like you have great doctors to help you through the maze of treatments. It also sounds like you have a great support group - many to love you and care for you and your family. Don't forget those that you can't see anymore that are attending to you, also. Talk to them often. I feel they can hear you and give you comfort. Life throws us curves (some huge like this one)and some are sooo sharp we aren't sure if we will stay on the road or fly off into oblivion. Take one day (or sometimes hour or minute) at a time and know that Heavenly Father loves you. We love you and will be fasting for you all on Sunday.
ReplyDeleteLove, Uncle Brent and Aunt Josie